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Caregiver Perspective: “Observation Days” in a Kafkaesque Hospital Setting
Abstract
My 82 year old mother came to live with me two years ago. She had had Type II diabetes for several decades, and had developed weakness and gait disturbances (loss of balance and falls) in the past few years. She has a degenerative brain disorder, progressive supranuclear palsy, often mistaken for Parkinson’s disease in its early stages, and had fallen numerous times, before coming to live with me, and while in my house. Her bones must be made of rubber because she never broke a hip, just developed nasty looking bruises, and, she refused to use a cane or walker. That can’t go on forever, and one day she fell, got up, fell again, said she was fine, but did not get out of bed.
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