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Ethical Implications of Incidental Findings in Pediatric Research
Abstract
This chapter reviews the literature and ethics of disclosure of incidental findings in pediatric research. A clear example of an incidental finding is an unexpected abnormal finding, such as a brain tumor, on a research neuroimaging scan of a volunteer. When the research participant is a child, the issue of what to disclose and who to disclose to becomes more complicated. Parents play an important decision-making role in the lives of their children, and in conjunction with researchers, decide the benefits and risks children are exposed to in research settings. The potential ethical concern is parents making decisions that counter the interests of the child and how to handle information obtained that is outside the anticipated research findings.
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