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LiveWell – Promoting Healthy Living and Wellbeing for Parkinson Patients through Social Network and ICT Training: Lessons Learnt and Best Practices
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Author(s): Maged N. Kamel Boulos (University of the Highlands and Islands, UK), Emmanuel Ifeachor (Plymouth University, UK), Javier Escudero (Edinburgh University, UK), Peng Zhao (Plymouth University, UK), Camille Carroll (Plymouth University, UK), Pedro Costa (INOVAMAIS – Serviços de Consultadoria em Inovação Tecnológica, S.A., Portugal), Gerhard Doppler (Bit media e-solutions GmbH, Austria), Laura Carrasco Marín (Asociacíon Parkinson Madrid, Spain), Luiza Spiru (Ana Aslan International Foundation, Romania), Kristin Helga Guðmundsdótti (Samvil ehf. Fjarkennsla.com, Iceland)and Marija Kosem (Splošna bolnišnica Brežice, Slovenia)
Copyright: 2017
Pages: 16
Source title:
Health Literacy: Breakthroughs in Research and Practice
Source Author(s)/Editor(s): Information Resources Management Association (USA)
DOI: 10.4018/978-1-5225-1928-7.ch021
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Abstract
About 1.2 million people in Europe have Parkinson's disease (PD). PD patients often suffer from social exclusion and depression due to progressive lack of control over the disease. Eventually, most require constant care, leading to huge socioeconomic burdens. To partially tackle this issue, 7 partners in 7 countries participated in LiveWell (EU-funded project, 2012-14) to develop an innovative Web-based education, training and social community platform targeting PD patients, carers and clinicians. This paper describes LiveWell from conception to completion, presents lessons learnt over the course of the project, and highlights some identified main areas of best practice. The Project Consortium might not have had the chance to implement everything learnt in the current outputs, but these lessons and guidelines can be later used to improve LiveWell, and can also be generalised to benefit similar e-health services. The combination of appropriate online education and social communities could help patients and carers cope positively with PD, promoting social inclusion and better outcomes.
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