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E-patients Empower Healthcare: Discovery of Adverse Events in Online Communities1
Abstract
E-patients can empower themselves and improve healthcare. In online communities, patients may discuss adverse events that are inadequately addressed in the literature. The author as a patient joined various online patient discussion groups and identified several such adverse events. For each such adverse event, the patient findings, the medical literature, and the implications are noted. Extracts from the literature that were provided to the patients were welcomed by the patients. Possible approaches to financially supporting such activities are sketched.
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