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Ethical Issues in Qualitative Data Collection Among Vulnerable Populations in Healthcare Setting

Ethical Issues in Qualitative Data Collection Among Vulnerable Populations in Healthcare Setting
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Author(s): Seng Fah Tong (National University of Malaysia, Malaysia), Wen Ting Tong (University of Malaya, Malaysia)and Wah Yun Low (University of Malaya, Malaysia)
Copyright: 2018
Pages: 18
Source title: Ensuring Research Integrity and the Ethical Management of Data
Source Author(s)/Editor(s): Cees Th. Smit Sibinga (University of Groningen, The Netherlands)
DOI: 10.4018/978-1-5225-2730-5.ch005

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Abstract

The chapter aims to highlight the ethical issues in qualitative data collection among vulnerable populations. Among the ethical issues are the conflict role of interviewers, adverse impact on future patient-therapist relationship, and emotional trauma both during and after data collection. The interviewers, usually healthcare providers, may subconsciously assume the role as a therapist during the interviews. Furthermore, the interviewers may encounter the participants (patients) in future clinical consultations; hence, information exchanges during the interviews could influence the therapeutic relationship. Recollection of experiences with an illness during the interviews can be a painful experience for patients. These ethical dilemmas can be addressed with appropriate sampling of participants and constant awareness of the researcher roles and relationships with the participants. Debriefing the participants with support is important to handle emotional upheavals.

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