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Listening to Alzheimer's: The Role of Social Location in Illness Narratives
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Author(s): Renee L. Beard (College of the Holy Cross, USA)and Maureen K. O'Connor (Bedford Department of Veterans Affairs Medical Center, USA & Boston University School of Medicine, USA)
Copyright: 2015
Pages: 32
Source title:
Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease
Source Author(s)/Editor(s): Cordula Dick-Muehlke (University of California, Irvine, USA), Ruobing Li (University of California, Irvine, USA)and Myron Orleans (California State University, Fullerton, USA)
DOI: 10.4018/978-1-4666-8478-2.ch001
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Abstract
After outlining major trends in the literature base, highlighting the shortcomings, and suggesting future areas of study, this chapter calls for including more sociological analysis, namely attention to social location, in research on the individual's changing perspectives in Alzheimer's Disease (AD), or AD narratives. Rather than assuming that illness experiences can be universalized, variables such as race/ethnicity, marital status, class, gender, religiosity, and age as well as the roles of mass media and medicine, matter deeply in how AD is interpreted and experienced. This chapter proposes that psychosocial studies of the topic need to systematically explore at least five areas: 1) comprehensive illness narratives, including the potential positive aspects, 2) the role of sociodemographic variables, 3) the narrative transformations throughout the illness trajectory, 4) the bioethical implications of diagnosing individuals increasingly earlier, and 5) the impact of institutional forces like mass media and modern medicine on illness narratives.
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