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“Intertwined Lives”: Narratives of Children With Disabilities and Their Siblings
Abstract
Sibling relationships are complex and unique, often spanning a range of deep emotions. The experiences of children with disabilities and their siblings are arguably seldom documented, particularly in the Global South. The aim of this chapter was to uncover the narratives of young children with disabilities and their siblings in Sri Lanka. Ten dyads of children with disabilities and their siblings and one quartet of siblings were included in this study. Opportunities were offered to the participants to engage in conversation aided by kinetic family drawings. An interview guide was used to support this process. The participant data were analyzed through the lens of the “lived experience” of family dynamics in the tradition of interpretative phenomenological analysis. This chapter will discuss the two complex broad themes of a surrogate parenting role and normative sibling relationships, which at times converge and at times diverge.
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