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Ensuring Privacy of Participants Recruited via Social Media: An Australian Retrospective Visualisation and Roadmap

Ensuring Privacy of Participants Recruited via Social Media: An Australian Retrospective Visualisation and Roadmap
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Author(s): Chandana Unnithan (Torrens University Australia, Australia), Paula M. Swatman (Swinburne University, Australia)and Jo-Anne Kelder (University of Tasmania, Tasmania)
Copyright: 2020
Pages: 19
Source title: Data Analytics in Medicine: Concepts, Methodologies, Tools, and Applications
Source Author(s)/Editor(s): Information Resources Management Association (USA)
DOI: 10.4018/978-1-7998-1204-3.ch077

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Abstract

Researchers worldwide are increasingly looking to recruit research participants via social media (particularly @Facebook and @Twitter) because they appear to offer access to a wider range of research participants and afford inherently convenient tools for recruitment. In Australia, the National Statement on Ethical Conduct in Human Research, together with the federal Privacy law and a number of state-based privacy statutes, provide support and guidance for this novel approach. This article offers a preliminary analysis and discussion of this trend from an Australian perspective, illustrated by an enquiry into the ethical challenges posed by social media-based recruitment, conducted in an Australian university in 2015. Leximancerâ„¢ was used as an analytical tool and the content from social media sites used for a small number of research studies conducted up to 2015, taken in conjunction with the various national human research ethics guidelines, offered a means of understanding how ethical challenges of privacy and anonymity can be addressed for responsible social media-based research.

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